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    Negative Descriptors of Patients With Sickle Cell Disease in the Electronic Health Record.

    April 1, 2026 · JAMA network open

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    Key takeaway

    This study found that Black patients with sickle cell disease (SCD) are often described more negatively in medical records compared to other Black patients and those with chronic pain. This matters because these negative descriptions can lead to biased care, affecting how our community receives treatment.

    Why this matters for our communities

    Research in hematology helps close long-standing gaps in how Black and African American families are studied, diagnosed, and cared for. Use findings like this one to start informed conversations with your care team — not as a substitute for personal medical advice.

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