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    Moving on Up: Shifting Sickle Cell Disease Management During Adolescence in Preparation for Adulthood.

    August 14, 2026 · Pediatric blood & cancer

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    Key takeaway

    Black teens with sickle cell disease and their parents feel unprepared for the shift to adult care. Gradually giving teens more responsibility for their health helps, but better information and self-advocacy skills are needed to improve their well-being as adults. This matters for our community to ensure our youth live longer, healthier lives.

    Why this matters for our communities

    Research in hematology helps close long-standing gaps in how Black and African American families are studied, diagnosed, and cared for. Use findings like this one to start informed conversations with your care team — not as a substitute for personal medical advice.

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