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    Early Developmental Screening and a Home-Based Caregiver Intervention for Infants and Toddlers With Sickle Cell Disease: Protocol for a Prospective Mixed Methods Study.

    August 14, 2026 · JMIR research protocols

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    Key takeaway

    This study found that young Black children with sickle cell disease often face developmental delays early on. This matters because early support at home could significantly help our children's growth and development, giving them a better start.

    Why this matters for our communities

    Research in hematology helps close long-standing gaps in how Black and African American families are studied, diagnosed, and cared for. Use findings like this one to start informed conversations with your care team — not as a substitute for personal medical advice.

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